News

New interview about rare diseases

12. 12. 2024 News

Interview with Radislav Sedláček, director of the Czech Centre of Phenogenomics, focused on RD factory you can find here: https://vzacni.cz/pacienti-nam-pomohou-posunout-nas-vyzkum-dal-rozhovor-s-doc-radislavem-sedlackem/

First round of RD factory proposal collection closed, new round is open!

05. 12. 2024 News

The first round of nomination collection in RD factory Program was closed on December 6, 2024. Proposals received later will be submitted in the next round that will close for evaluation in June 2005.

Our colleagues participated in the public debate The Genome Era.

22. 11. 2024 News

https://www.ceskatelevize.cz/porady/16550392373-doba-genova-s-danielem-stachem/

RD factory in media

05. 11. 2024 News

RD factory project caught the attention of journalists and an interesting report was created about us, which you can find at these links: https://www.seznamzpravy.cz/clanek/domaci-zivot-v-cesku-cesi-nasli-cestu-k-lekum-na-vzacne-nemoci-pro-cely-svet-264955 https://www.idnes.cz/zpravy/domaci/lecba-vzacne-nemoci-genetika-vedci.A241102_073111_domaci_dyn

6th CCP Phenogenomics Conference 2024: Advancing Gene Therapy and Rare Disease Research

11. 10. 2024 News

The 6th CCP Phenogenomics Conference, held from September 17–18, 2024, in Prague, brought together experts in the field of rare diseases, gene therapy, and experimental models. The conference saw a robust participation of 263 attendees, including 29 speakers from around the world. Among the key sessions were discussions on gene function models, therapeutic delivery mechanisms,…

Open Call for Proposals: Nominate Your Gene or Disease

01. 10. 2024 Call News

Open Call for Proposals: Nominate Your Gene or Disease The RD-Factory Program invites proposals for preclinical studies aimed at rare human genetic diseases. This open call seeks contributions from the scientific community, rare disease experts, societies, and patient families to: More information – Rare Disease Factory

Last day for abstract submission at the 6th CCP Phenogenomics Conference 2024

26. 08. 2024 Information News

Is your research topic related to rare diseases? Do you want to get more information on how experimental models can boost your research? Join us for the 6th CCP Phenogenomics Conference. Deadline for abstract submission is 27th August 2024, so do not miss the opportunity to share research outcomes with our community. Register at: https://www.ccp-conference.cz/registration-abstracts-submission/

Charity run for Amálka Ježková

02. 08. 2024 Event

31 August, 2024, Šumperk, Czechia / Join a community that shares a common goal – help fund research and treatment for rare diseases with us firefighters, paramedics and police officers. Funds raised help improve the quality of life for many children. The funds raised are sent to a transparent account and will be invested in…

Interested in rare diseases? Register for the 6th CCP Phenogenomics Conference 2024

01. 08. 2024 Information News

Are you an expert in rare diseases or does someone close to you suffer from a rare disease?Register to our 6th CCP Phenogenomic Conference 2024, where we will present examples of good practice in collaboration between rare disease researchers and patient organisations in Session 7 “Rare diseases & bottom-up efforts to develop (gene) therapies” Registration…

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