News
New interview about rare diseases
Interview with Radislav Sedláček, director of the Czech Centre of Phenogenomics, focused on RD factory you can find here: https://vzacni.cz/pacienti-nam-pomohou-posunout-nas-vyzkum-dal-rozhovor-s-doc-radislavem-sedlackem/ Read more
First round of RD factory proposal collection closed, new round is open!
The first round of nomination collection in RD factory Program was closed on December 6, 2024. Proposals received later will be submitted in the next round that will close for evaluation in June 2005. Read more
Our colleagues participated in the public debate The Genome Era.
https://www.ceskatelevize.cz/porady/16550392373-doba-genova-s-danielem-stachem/ Read more
RD factory in media
RD factory project caught the attention of journalists and an interesting report was created about us, which you can find at these links: https://www.seznamzpravy.cz/clanek/domaci-zivot-v-cesku-cesi-nasli-cestu-k-lekum-na-vzacne-nemoci-pro-cely-svet-264955 https://www.idnes.cz/zpravy/domaci/lecba-vzacne-nemoci-genetika-vedci.A241102_073111_domaci_dyn Read more
6th CCP Phenogenomics Conference 2024: Advancing Gene Therapy and Rare Disease Research
The 6th CCP Phenogenomics Conference, held from September 17–18, 2024, in Prague, brought together experts in the field of rare diseases, gene therapy, and experimental models. The conference saw a robust participation of 263 attendees, including 29 speakers from around the world. Among the key sessions were discussions on gene function models, therapeutic delivery mechanisms,… Read more
Open Call for Proposals: Nominate Your Gene or Disease
Open Call for Proposals: Nominate Your Gene or Disease The RD-Factory Program invites proposals for preclinical studies aimed at rare human genetic diseases. This open call seeks contributions from the scientific community, rare disease experts, societies, and patient families to: More information – Rare Disease Factory Read more
Last day for abstract submission at the 6th CCP Phenogenomics Conference 2024
Is your research topic related to rare diseases? Do you want to get more information on how experimental models can boost your research? Join us for the 6th CCP Phenogenomics Conference. Deadline for abstract submission is 27th August 2024, so do not miss the opportunity to share research outcomes with our community. Register at: https://www.ccp-conference.cz/registration-abstracts-submission/ Read more
Public debate – Gene Age – First Year / Veřejná debata – Doba genová – rok první
14 September (14. září 2024), Praha Read more
Charity run for Amálka Ježková
31 August, 2024, Šumperk, Czechia / Join a community that shares a common goal – help fund research and treatment for rare diseases with us firefighters, paramedics and police officers. Funds raised help improve the quality of life for many children. The funds raised are sent to a transparent account and will be invested in… Read more
Interested in rare diseases? Register for the 6th CCP Phenogenomics Conference 2024
Are you an expert in rare diseases or does someone close to you suffer from a rare disease?Register to our 6th CCP Phenogenomic Conference 2024, where we will present examples of good practice in collaboration between rare disease researchers and patient organisations in Session 7 “Rare diseases & bottom-up efforts to develop (gene) therapies” Registration… Read more